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Old 04-09-2008, 02:00 PM   #21 (permalink)
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I hear you, Lisa.

My Noahbear has scarring from the IVs that stayed inserted for weeks at a time, including his HEAD. He's had more blood drawn that anybody should ever have to experience.

So with that being, said, Jess, you should do what's going to make your little guy the most comfortable and what will be the most effective and conclusive.

We went through crazy reflux problems, but our miracle drug was the Prevacid solutabs (15 mg, cut in half). He stayed on the Prevacid up until a few months ago. It's amazing, but you have to stick with it. Reflux does remedy itself so easily. I'm wondering if it's just reflux and not a food allergy. The same thing happened with Noah when we tried to wean him off of the meds -- reflux returned.
Yep Kate has the scaring as well....especially her belly button because of the central line they inserted in it, it started to heal around it and when they pulled it out they had to cut the stump open to get it out.....OUCH! She will never have a cute little belly button but everytime I see it, it reminds me of what she went through and even if she is being a PITA at the time I just have to cuddle her and be glad she made it through....

We also had a problem when weaning off the reflux meds and because of that we put her back on them and kept her on them till she was about 11 months old and then slowly weaned her down off of them completely, that way if we decreased them and she got bad we knew she wasnt ready to be off and it wasnt as hard on her as just stopping.

Have you put him back on the meds? If you have does it seem to be helping. Being that he is a preemie maybe he is just not developed enough yet to be off them and maybe that is the problem.


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Old 04-09-2008, 02:33 PM   #22 (permalink)
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Quote:
Originally Posted by Val View Post
My Noahbear has scarring from the IVs that stayed inserted for weeks at a time, including his HEAD. He's had more blood drawn that anybody should ever have to experience.
My sister has lots of lovely scars from spending her first 3 months of life in NICU and having open heart surgery during that time. You have to do what you have to do.


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Old 04-09-2008, 11:32 PM   #23 (permalink)
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Jess,

When you consider reflux, you have to consider that there is erosion going on in the esophagus. It takes a considerable amount of time to heal the erosions and correct the problem. Reflux meds must be given for the long haul if reflux truly is a problem.

Rebecca - we don't do "unnecessary testing" on our kids either. But, Ian has many food allergies/sensitivities and I opted to have a 2 second prick, rather than a long drawn out process, because we wanted a complete food panel done. They simply can't do a complete food panel on a toddler. There isn't enough room on the body, for one thing...and for the other, I know how uncomfortable it is.

Keeping kids healthy, for some of us, is a great challenge.... no matter what we do. Overall... my kids are incredibly healthy, however...they have ongoing medical issues that "could" be problematic if we didn't stay on top of it. It's the fault of genetics, quite pure and simple.


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Old 04-10-2008, 10:56 AM   #24 (permalink)
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Rebecca - we don't do "unnecessary testing" on our kids either. But, Ian has many food allergies/sensitivities and I opted to have a 2 second prick, rather than a long drawn out process, because we wanted a complete food panel done. They simply can't do a complete food panel on a toddler. There isn't enough room on the body, for one thing...and for the other, I know how uncomfortable it is.
I'm not saying you are doing unnecessary testing. Just saying at my clinic - it's not a 2 second pin prick for infant blood draws. Liriel has had several of them, and they looked most unpleasant.


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Old 04-10-2008, 02:34 PM   #25 (permalink)
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After talking with my ped yesterday, I decided to go ahead with the skin test this morning. He did great (i'm not sure if it was him, or the nurse ) Never cried, never acted uncomfortable. He has a SLIGHT intolerance to chicken, but nothing bad at all. They didn't even classify is at a +1. Everything else was negitive, so hopefully the bloody diareaha clears soon!


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Old 04-10-2008, 03:02 PM   #26 (permalink)
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Jess - skin testing doesn't test for intolerances. Skin testing is for allergies, only. If the doctor told you after testing that there was a reaction, it's an allergic reaction.... NOT an intolerance. There are no tests for intolerance, unfortunately.


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Old 04-10-2008, 03:12 PM   #27 (permalink)
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Jess - skin testing doesn't test for intolerances. Skin testing is for allergies, only. If the doctor told you after testing that there was a reaction, it's an allergic reaction.... NOT an intolerance. There are no tests for intolerance, unfortunately.
So you are saying she should probably avoid all chicken with Dean then? That seems like such a weird thing to be allergic to.


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Old 04-10-2008, 03:24 PM   #28 (permalink)
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