Donna

Anyone have any experience with it?

Jayden got his first two doses yesterday and each time he SCREAMED the entire treatment and was a little monster afterward. He's been getting the Xopenex treatments for a month now and has never freaked while doing it, he actually enjoys it. The same thing happened today while doing it and he has been terrible all day. Literally he would not let us put him down at all without loosing it. Granted he has been miserable and pulling this to some extent for a while now, but I have not seen him this uncontrollable in a long time.

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RetromamaJess

we use Pulmicort everytime we have a chest thing, but we never have had that problem. This is what I found, but i'm sure Dr. Emma could give you more info

https://online.epocrates.com/u/10a2324

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Angela

Nope, sorry.. But I hope it starts to get better for the little guy to take

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Emma

I haven't heard of that being associated with the drug. Is it the taste that's freaking him out? I didn't think it had a "taste", but I've never used it. Does he get better after you rinse his mouth out or give him something to drink? Make Bobby taste test

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RetromamaJess

It has a weird odor to it, and i know they told me to rinse out his mouth afterwards, due to thrust? (Emma, is that right?)

Also, how are you giving it with the neb...mask, blowby, or in his mouth?

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Val

Let me tell you about Pulmicort...

Back when Noah was still seeing the pediatric pulmunologist for the RSV antibodies he was prescribed Pulmicort as a preventative measure.

Keep in mind that Noah was already on Xopenex as an as-needed basis.

Well, Noah got really, really, really ill from the Pulmicort.

He got a debilitating respiratory infection from the Pulmicort.

If you read the insert, Pulmicort:

- is known to cause a host of problems, including respiratory infection

- is intended for kids ONE YEAR and older and UP....at the very earliest.


DH and I filed a complaint against the practicioner, and ended up getting over $24,000 in medical bills "erased" that were due for the RSV antibody injections.......

Please just be careful - you have other options. Xopenex is highly effective if used as directed, and worked splendidly for Noah. In fact, we still use in on occasion if he get sick.

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belinda

Zachery and Austin were both on it. It doesn't taste very well, so they don't enjoy it. But, it also has the tendency to make them hyperactive.

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I proudly breastfeed/pumped for 9 months, 3 weeks!


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Emma

It can cause thrush if you don't rinse out the mouth and wipe around the mouth after dose. Pulmicort does have a place in therapy if prescribed and used properly. I've seen it prescribed at doses too high IMO.

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Kris